It was not until I was two years old that my condition was properly diagnosed as congenital afibrinogenemia. That would have been about 1951, and at that time there were only two or three other cases of afibrinogenemia that had been identified. Dr. William Dameshek a hematologist in Boston, was the doctor who correctly identified my bleeding disorder. I was very lucky to have been under his care until 1966 when he retired from Tufts New England Medical School.
Among other things, this is a blog about my experience as a person with a severe bleeding disorder. This is not unique, but it is rare. I am, as my friend Amy puts it, "one in a million."